“The Power of Perseverance” Spinal Muscular Atrophy (SMA) Awareness & Education Campaign
What would you do when faced with a challenge – give up or overcome it? The mother of a Type 1 SMA patient, Liu Tze Fei, chose not to give up on her daughter, although she understood that the path for Tze Fei would not be easy and might even be hopeless. She insisted on raising Tze Fei by herself. Patients with Type 1 SMA normally cannot live more than two years. Under the care of her mum and with support from FSMA, Tze Fei is now five years old. Tze Fei’s mum reads her stories, plays musical instruments, does exercise with Tze Fei, and takes her out for a “walk” every day. She believes that as long as she doesn’t give up, there may be a miracle in the future.
With the support of Biogen, FSMA turned the stories of various SMA patients and their family members into video clips. FSMA hopes that people in Hong Kong can stay positive and not give up, no matter how difficult the future might be.