資訊及刊物

“With love, nothing is too difficult.”「只要有愛,任何事都不會困難。」

May 26, 2020

“The Power of Perseverance” Spinal Muscular Atrophy (SMA) Awareness & Education Campaign

 

“With love, nothing is too difficult.” With this belief, Wenus turned the worry and sadness she felt about her son Marcus’ diagnosis of Type 1 SMA into motivation for taking care of her son. To provide more exercise opportunities for Marcus, she used her fertile imagination to create many innovative exercise tools. She used water pipes and fabric to build a frame so Marcus can move his arms when he is sitting. She hopes one day her persistence will make her dream come true, and Marcus will walk to her and give her a hug and a kiss.  

 

With support from Biogen, FSMA turned the stories of various SMA patients and their family members into video clips to encourage people in Hong Kong to stay positive during difficult times.

 

「堅毅的力量」認識和教育脊髓肌肉萎縮症公眾計劃短片第三輯

 

「只要有愛,任何事都不會困難。」Wenus本著這個信念,將對兒子Marcus確診一型脊髓肌肉萎縮症的憂慮難過,轉化為積極照顧兒子的動力。她為了讓Marcus可以有更多運動的機會,她絞盡腦汁自製一個又一個運動器材。她將水喉通加布條,自製支架令Marcus坐著時可以多加運動雙手。她盼望有一天,她的堅持能令她夢想實現,Marcus能走過來給她一個擁吻。

 

脊髓肌肉萎縮症慈善基金(FSMA)在渤健公司的全力支持下,將多位脊髓肌肉萎縮症病友及家人的故事,拍成短片,勉勵大家在困難當前,保持積極。

 

 

 

 

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© 2017 by Families of SMA (Spinal Muscular Atrophy) Charitable Trust.