資訊及刊物

“The Power of Perseverance” Spinal Muscular Atrophy (SMA) Awareness & Education Campaign 全新「堅毅的力量」認識和教育脊髓肌肉萎縮症公眾計劃短片第二輯

April 15, 2020

With unwavering perseverance and “The Strength of Two”, Josy Chow and her mother overcame many challenges in life, one after the other – from living beyond the age of two, to achieving Josy’s dream of attending university.

 

Families of Spinal Muscular Atrophy Charitable Trust (FSMA) and Biogen have produced a series of videos to recount the intimate stories of four SMA patients who have bravely overcome the challenges brought by SMA. Their stories convey their “Power of Persev

 

erance” to the local community.

 

More videos will be launched in May. Stay tuned. Enjoy!

 

周佩珊和她的媽媽組成的「堅毅二人組」,憑著她們堅毅的力量,克服生命中一個又一個的難關,令患有一型脊髓肌肉萎縮症的佩珊,不但奇蹟地活下來,更實現入讀大學的夢想。

 

脊髓肌肉萎縮症慈善基金(FSMA)在渤健公司的全力支持下,集結多位病友的經歷,希望以他們的故事,勉勵大家在困難當前,也要積極面對。

 

更多SMA病友的短片將在5月推出,請大家密切留意!

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