資訊及刊物

“The Power of Perseverance” Spinal Muscular Atrophy (SMA) Awareness & Education Campaign 全新「堅毅的力量」認識和教育脊髓肌肉萎縮症公眾計劃

February 7, 2020

 

Families of Spinal Muscular Atrophy Charitable Trust (FSMA) and Biogen produced a series of videos to recount the intimate stories of four SMA patients, who bravely overcome challenges brought by SMA. Their stories convey their “Power of Perseverance” to the local community.

 

“The Ball that Can’t Be Thrown” (Click to watch the video) recounts how Ho Yuen Kei overcome challenges in life and now become the World’s No.2 Boccia Athlete is the first video of the series.

 

Other videos will be launched in coming weeks. Stay tune. Enjoy!

 

脊髓肌肉萎縮症慈善基金(FSMA)在渤健公司的全力支持下,集結多位SMA患者及其家人,積極、堅毅面對疾病的經歷,以一系列的短片,勉勵大家在困難當前,也要積極面對。

 

在第一集中,我們有患有二型SMA的何宛淇小姐是香港職業硬地滾球運動員,是BC3個人級別世界排名第二。她的運動員生涯並非一帆風順。過去她曾因SMA令肌力轉差而需要轉至一個新的硬地滾球級別,從新學習,憑著她「盡其力」的人生態度,努力不懈練習,在短時間內取得東京2020殘疾人奧運會得參賽資格。 一齊收看 何宛淇「抓不著的滾球」的故事。

 

更多SMA病友的短片將在3月頭前推出,請大家密切留意!

 

 

 

 

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