資訊及刊物

SMA Awareness & Education Campaign 認識和教育脊髓肌肉萎縮症

January 14, 2020

 

As part of our SMA Awareness & Education Campaign, we are honoured to introduce

“The Power of Perseverance” picture book series – comprising a set of four appealing and inspirational picture books. The books recount heart-warming stories of four SMA patients, who have bravely overcome challenges brought on by SMA, and the compelling bonds of love and care between these patients and their family members.

 

The books are simply written and designed to appeal to children who love reading and also to those who enjoy illustrated books. They instill positive attitudes and fortitude in facing adversities in life.

 

If you like to get a set, please see below:

Download the SMA Awareness & Education Campaign donation form

 

 

作為這次認識和教育脊髓肌肉萎縮症活動,我們很高興地介紹《堅毅的力量》一套四冊引人入勝和鼓舞人心的繪本。繪本以温馨、動人的手法記錄四位脊髓肌肉萎縮症患者與家人同行, 積極、堅毅面對疾病的真實經歷。他們勇敢地克服了SMA罕見病帶來的挑戰,令愛與關懷將病者與家人緊扣一起。

 

 一套四冊的繪本設計是以簡單編寫和插圖來吸引喜歡閱讀的孩子。可以鼓勵大家要以堅毅精神面對生命中的挑戰,活出精彩的人生。

 

 

 如有意獲取一套四冊繪本,請參考以下內容:

下戴認識和教育脊髓肌肉萎縮症捐款表格

 

 

 

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© 2017 by Families of SMA (Spinal Muscular Atrophy) Charitable Trust.