資訊及刊物

11/8/2020

很高興與大家分享一則喜訊,美國食品藥物管理局(簡稱FDA)正式批准治療SMA的新藥Evrysdi (risdiplam) 面世 ! 跟Spi...

26/5/2020

“The Power of Perseverance” Spinal Muscular Atrophy (SMA) Awareness &...

15/5/2020

FSMA’s website has been created since the charity’s establishment. Wit...

23/4/2020

The double impact of the socio-political unrest and the outbreak of Co...

15/4/2020

“The Power of Perseverance” Spinal Muscular Atrophy (SMA) Awareness &...