What is SMA
Information of SMA Disease
1. Standards of Care for Spinal Muscular Atrophy
This provides information for Families about how to take care of patients with SMA. Recommended!
Discussion of Fostering Health and Growth for Spinal Muscular Atrophy
3. Caring Choices
Booklet for Families of Infants Newly Diagnosed with SMA Type I
4. Breathing Basics
Discussion of Respiratory Care for Children with Spinal Muscular Atrophy
5. Empowering Families of SMA--Navigating your Child's Course of Therapy for Best Outcomes
Discussion of Role PT, OT, Speech and Family.
6. The Family Guide to the Consensus Statement for Standard of Care in SMA*
This provides information for parents about how to take care of patients with SMA.
7. A Guide Of Common Passive Stretching Exercises
This introduces some passive exercises that can slow down the muscle deterioration in patients.
8. A Guide Of Active Exercises
This introduces some active exercises that can slow down the muscle deterioration in patients.