What is SMA

Information of SMA Disease

Reference

1. Standards of Care for Spinal Muscular Atrophy

This provides information for Families about how to take care of patients with SMA.     Recommended!

2.Nutrition Basics

Discussion of Fostering Health and Growth for Spinal Muscular Atrophy

3. Caring Choices

Booklet for Families of Infants Newly Diagnosed with SMA Type I

4. Breathing Basics

Discussion of Respiratory Care for Children with Spinal Muscular Atrophy

5. Empowering Families of SMA--Navigating your Child's Course of Therapy for Best Outcomes

Discussion of Role PT, OT, Speech and Family.

6. The Family Guide to the Consensus Statement for Standard of Care in SMA*

This provides information for parents about how to take care of patients with SMA.

7. A Guide Of Common Passive Stretching Exercises

This introduces some passive exercises that can slow down the muscle deterioration in patients.

8. A Guide Of Active Exercises

This introduces some active exercises that can slow down the muscle deterioration in patients.

​​Tel/電話 :  2811 1767

Fax/傳真 :  2510 7199
Email/電郵 :info@fsma.org.hk

Address​/地址: 

Room 1402, 14/F, SUP Tower, 83 King's Road, North Point, Hong Kong

​香港北角英皇道83號聯合出版大廈14樓1402室

© 2017 by Families of SMA (Spinal Muscular Atrophy) Charitable Trust.