Click the box for the latest medical research news from
Families of SMA (USA)

Click below report written by Dr. William Yip, our Medical Advisor, after attending the Annual Family & Professionals Conference in USA in 2011

Click below report written by Prof. Vivian Chan et al. from
Department of Medicine, University of Hong Kong in 2004

In order to increase the awareness of Spinal Muscular Astrophy for patients and their families, we will regularly provide information about the disease, such as methods of treatment and care, how to face daily life, the development of the latest medical information, etc. The following is information about :
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A Guide Of Active Exercises
This introduce some active exercises that can slow down the muscle deterioration in patients. |
A Guide Of Common Passive Stretching Exercises
This introduces some passive exercises that can slow down the muscle deterioration in patients.
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The Family Guide to the Consensus Statement for Standard of Care in SMA*
This provides information for parents about how to take care of patients with SMA. |
Empowering Families of SMA--Navigating your Child's Course of Therapy for Best Outcomes
Discussion of Role PT, OT, Speech and Family. |
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BREATHING BASICS
Discussion of Respiratory Care for Children with Spinal Muscular Atrophy |
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* The copyright of this Family Guide is owned by Families of SMA(USA). We are thankful to obtain the permission to translate and publish it in our website.
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above application forms are published in PDFformat to facilitate
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4.0 by clicking here.
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